Os desafios da tríade de atendimentos para inclusão de uma estudante com síndrome de Patau

Abstract

This monographic study is based on the challenges of the triad of attendance - Specialized Educational Attendance, Hospital Educational Attendance and Home Pedagogic Attendance - for the inclusion of a student with Patau's syndrome in the public education of the country of São Luís-Maranhão. The research aimed to identify what are the challenges faced by the attendance to include a student diagnosed with a rare syndrome associated with multiple disabilities in the common teaching. In order to do so, a field study was conducted in order to explore and describe how interventions have been given in the environments experienced by the student aiming at autonomy and stimulation of their abilities. In this research, the qualitative approach was adopted, using indirect observation and semi-structured interviews as instruments for data collection. From the studies of Patau (1960), Ribate (2010) and Zen (2008) on the Patau's syndrome and its characteristics, from Farrel (2008a, 2008b) on the severe learning difficulties and the multiple deficiencies and inclusion legislation pointed out by official documents. During the research, we sought to understand how the right to education for students with multiple disabilities in the municipal public education network is being ensured by identifying how the teachers of the regular teaching room and the multifunctional resource room worked to promote student autonomy with Patau Syndrome, as well as identifying if there was communication between the schools and the hospital responsible for the treatment of the student. With this study, it was inferred that the schools face several challenges, such as lack of knowledge, affectivity, structure, accessibility and communication between schools and other professionals responsible for the treatment of student's health. Although they were already guaranteed in other documents, Hospital Educational Attendance and Pedagogic Home Care became mandatory in 2018, which resulted in the inactivity of the services and, consequently, the lack of awareness of this right by many people